marnie5212 years ago

I know just how you feel. As soon as I relax my tongue it touches my teeth and is so sore it keeps me awake trying to avoid contact. The only thing I have found that helps is teething gel. It stings when you apply it but eases it for long enough to get to sleep. Applying it before eating helps too. Good Luck Mon. Gentle hugs Marnie

Susie_Q12 years ago

I have been taking Krill oil every day. I think this has made a difference for me with regard to the Sjogrens with the added bonus that it should help my joints as I have RA. Also if you are taking methotrexate that can give you mouth ulcers. I taken Folic Acid to stop this from happening to me.

CuriousCat12 years ago

I had similar symptoms, but probably less severe. I have gone on a salicylate free diet, which is quite limiting but it has virtually got rid of my symptoms. I saw a dietician who got me on the right track (she works with an immunologist). I suggest you get a toothpaste with no mint flavouring (although they can be hard to find - Alfree is one brand) don't use mint mouthwash and only use the biotene products with pear base - not mint. That would be a good start but the diet will help most. And don't believe all the stuff on the internet about salicylates, if you want a good list of food see a dietician - or if you contact me I can send you a hard copy. Good Luck

Bondgirl7312 years ago

Thank you so much everyone for your handy tips and advice! I know diet plays a huge role, as too does stress. I'm not taking meds, especially not methotrexate...just boosting my body with all the good stuff. I do notice (as some of you may agree) that things flare around times where I tend to bve sleep deprived or stressed out, which makes sense given it's the immune system. Hope you all have a happy and healthy week! Hugs from Mon